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    hair loss???

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    Chef #807468
    Tue Apr 01, 2008 10:08 pm
    Regular "Line Cook" Poster
    i'm new here, and new to being gluten free.

    i don't have celiac, i have had a biopsy done that came back negative, but i am suspecting i am wheat intolerant.
    so maybe this is not the place to ask,
    i wanted to know if anyone had thinning hair before going wheat/gluten free, then had improved hair thickness and healthfulness after starting a wheat/gluten free diet?

    obviously i ask because my hair is thinning , dry and brittle.
    thank you for any insight.
    Wed Apr 02, 2008 6:23 am
    Forum Host
    wave.gif Hi Kathy
    Great to see you in the forum and welcome to zaar icon_biggrin.gif
    (Gluten-free is wheat free too icon_cool.gif

    I have celiacs in my family and after testing was diagnosed as having IBS. Then 10 years later I was referred to an allergy specialist doctor. I commenced on a very restrictive allergy 'elimination diet' for well over 6 months. The outcome is highly gluten/wheat intolerant, lactose intolerant and a few other food type allergies mainly involving flavourings, preservatives, fructose and sorbitol. I am also highly allergic to dustmite, pollens, insect stings/bites and numerous other no food/chemicals.

    I am following a strict gluten-free diet and undertaking immunotherapy for non-food allergies. My lactose intolerance is somewhat improving from zero to some tolerance.

    I have to say that I have never felt better in my life. There is no way that I will stray from the gluten-free diet ever again!

    I had hair loss and now after almost 4 years my hair is much thicker now. My skin has improved, no severe headaches, less congestion, much clearer thinking processes, no more bloating, stronger fingernails, less problems with being sick all the time and catching every virus/bug around me and most of all no more IBS.

    My hairdresser comments now on just how much quicker my hair grows and that it has improved in texture and thickness.

    The longer I follw a strict gf diet the better I feel. I hope it does the same for you

    Chef #807468
    Wed Apr 02, 2008 3:28 pm
    Regular "Line Cook" Poster
    Hi Julie,
    thanks for the reply.
    I have noticed that after avoiding wheat and sugary foods for a couple days, i normally feel better.
    more 'awake' , happier, thinking more clearly.

    So you think if i try this diet, oh say, 6 months, that will give me a good idea as to weather this is my issue?

    How do you find a good doctor to work with? mine always want to put me on drugs (which i don't feel is necessary or helpful), or shoo me away when my tests come back normal.

    but i'd like to try some dietary changes, especially to see if its wheat related.
    thanks again, that gives me hope about my hair situation.
    Wed Apr 02, 2008 4:16 pm Groupie
    Hi chef,

    I would recommend seeing a gastro specialist. Since most primary care physicians mainly handle the standards (the flu, strep throat, etc.) on a daily basis, stranger diagnoses like Celiac disease might be too much for them without some extra training or information. Gastroenterologists are better equiped for this.

    When you had your biopsy done, were you still eating wheat? I know that sometimes people choose to take wheat and gluten out of their diet without consulting their doctor and then get a biopsy done so the results come back with a false negative. Also, I had the biopsy but my doctor also drew some blood to confirm my celiac diagnosis. Maybe that's something that needs to be done in your case.

    If not, taking wheat out of your diet may just be a personal preference, and that's great too! Especially if you've already noticed a change. I can tell you that I have noticed my hair growing faster (not necessarily fuller) since going gluten free. That may be because I also started taking a daily vitamin then too. Who knows? icon_rolleyes.gif

    Good luck and keep us posted!
    Chef #807468
    Wed Apr 02, 2008 5:00 pm
    Regular "Line Cook" Poster
    Hi DreamoBway,
    well, i was told to fast for 12 hours maybe? and it's been a while ago, a few years, but i think that maybe i had cut back on wheat at the time and kind of wondered if that might affect the results.
    the blood test sounds a lot simpler, i'd rather do that then go through the endoscopy again.

    i just have a few questions,
    had you noticed your hair thinning before your gluten free days? and how long have you been eating gluten free?

    Wed Apr 02, 2008 7:31 pm Groupie
    Yeah, endoscopies are no fun. If you do happen to get a blood test, it would probably be best (though kind of unpleasant) for you to start eating wheat again. Then you'll get accurate results. But I know several people who haven't officially been diagnosed with Celiac disease but choose to eliminate wheat and all gluten from their diets. Obviously, either way, I would consult your doctor.

    I didn't specifically notice hair thinning loss before my diagnosis, but I have noticed that my hair is growing faster since then. My other symptoms were much, much more prevalent - nausea, bloating, fatigue, and depression. I've been on a GF diet since September '06. It's tough and expensive but I feel oh so much better.
    Chef# 616082
    Thu Apr 03, 2008 10:40 am Groupie
    We've been gluten free here due to wheat intolerance, not celiac, for about a year. The wheat intolerance lead to low thyroid resulting in big clumps of hair loss. I would suggest supplementing with a good multiple vitamin and essential fatty acids for the thinning as that sounds like a deficiency to me.
    As an added thought; my entire family started having trouble with thinning hair when we switched to Pantene, stopped when we threw it out.
    Thu Apr 03, 2008 6:18 pm
    Regular "Line Cook" Poster
    I have had a problem with hair loss. I haven't been diagnosed with anything, just suspect I'm intolerant of gluten so try to avoid it as much as possible. I started gf diet last May and don't loose as much hair, but also haven't noticed any really growing in either. Also interstingly enough I was diagnosed with Hypo Thyriodism last October. I say this because a pervious poster said that they had a low thyroid. Whatever the cause I wish you luck.

    Kathy McC
    Chef# 616082
    Thu Apr 03, 2008 6:31 pm Groupie
    My daughter takes Thyrosense which is nutritional support to increase your own thyroid production and utilization instead of taking a prescription. It totally eliminates the symptoms: hair loss, weight gain, fatigue and irritability when she takes it.
    Thu Apr 03, 2008 9:46 pm
    Regular "Line Cook" Poster
    Thanks for the information Newbie "Fry Cook", I will keep this in mind. I really don't like taking medicine. I will see if I can find it in my area.
    Kathy McC
    Fri Apr 04, 2008 6:10 pm Groupie
    That was the thing that struck me as so amazing when I went GF. I have always had very thin, fine hair, and I thought that was just how my hair was, I never connected it to dietary issues. About a month or so after going GF, while fixing my hair for the day, I glanced in the mirror and thought my hair looked fuzzy and frizzy. Upon investigating further, I discovered that I had new hair growth comnig in all over my head, the fuzzy look was all this new, downy hair that was 1/4-1/2 inch long all over my head.

    I was elated, my hair is fuller than it has ever been in my life. It was something of an irritation when the new short hairs got long enough to really stick out, but still too short to do anything with, but an irritation I was happy to put up with.

    Since celiac damages the intestines, thus resulting in poor nutritional absorption, the impacts can occur in a wide variety of symptoms/problems anywhere in the body. Even if you have had a negative test once, don't give up. My cousin was gven a diagnosis of IBS based on her biopsy, and the doctor put her on a high-fiber, whole grain diet. SHe kept getting worse. When she followed my GF diet she rapidly improved. If you feel better and have reduced problems eating GF then listen to your body, even if you don't have the official diagnosis.

    Also, many medical professionals are poorly informed about celiac. The last time I went to see my doctor she was on vacation, so I saw someone else who was covering for her. He noticed in my file that I am celiac and got all excited asking me questions about living with the condition and finding resources to determine what I could/couldn't eat, etc. We spent the majority of the office visit with me educating him. He told me that when he was in medical school what they learned about celiac is that it is rare, doesn't effect many people in the US, and was covered briefly in one class about persistant gastric syptoms. He told me that he had diagnosed more celiac patients in three years than he was told he was ever likely to see in a lifetime and as a result he wanted to learn more about the condition.

    When I was finally diagnosed, it seems, looking back on my history, that I probably had active celiac for over 20 years. No doctor ever put it together. It was suggested by ob-gyn's nurse. She was reviewing my chart and taking information at the start of my annual visit and from the information she gleaned she recognized the possibility bacause she had family members that are celiac. She told my ob-gyn who ordered the first blood tests to start checking. You really might have to search for a doctor that knows about celiac and how to treat it if you continue to suspect this is the problem.
    Chef #807468
    Sat Apr 05, 2008 8:47 pm
    Regular "Line Cook" Poster
    Hi , thank you all so much for posting!
    i didn't get the email alert that there were more responses!

    thank you so much, it's so distressing loosing hair, especially for a girl. but all of your posts have given me hope. i feel like i've looked into every option for treating it (holistic options anyway) and i'm met with "it's just genetic" and a sympathetic look at every turn. well i'm only 32!
    coupled with my other symptoms, fatigue, foggy brain etc, i've been told i look like i should be a hypothyroid case, but all my tests always come back within normal limits!

    So i'm very interested in that thyrosense, i think i will look into that.

    I've been searching almost obsessively since i've gotten on this line of thinking. i found 2 books on amazon that i want to order:
    Breaking the Vicious Cycle and Grain Free Gourmet.
    both got good reviews.

    i just want to throw this out there: Being a vet tech, i couldn't help but notice how odd it is that dogs with food allergies are often allergic to the wheat, corn or soy in most dog foods. Allergy diets for dogs are normally made with rice or potatoes as the carb portion.
    Also i'm trying out a grain free diet on my cats. one has bad skin and ears, so i'm curious to see if her condition improves.

    not saying that grains are evil, but it does make one reconsider what we think of as a healthful diet...

    thanks again for all the responces.
    i'll let you know how it goes for me.

    Chef# 616082
    Sat Apr 05, 2008 9:20 pm Groupie
    I suggest borrowing books from the library before you decide to buy them.
    Early on I used reviews to buy three cookbooks and they are good, but not the ones I would have chosen had I read them first.
    My library buys books that I suggest if they don't already have it.
    I am so glad I requested they buy Robyn Ryberg's book because I was going to but after reading it I wouldn't have been happy with it because she literally uses nothing but starches to bake with.
    I did buy Annalise Roberts book, Gluten Free Classics. I bought the new edition which doesn't come out till September and the wait is killing me.
    Sun Apr 06, 2008 12:47 am
    Forum Host
    wave.gif Hi Chef #807468

    I have heard of tests for Celiacs coming back with a false negative and they can also come back negative if you have been avoiding gluten containing foods.

    Sometimes its instinctive that you will avoid foods that disagree with you. For example-you know that bread makes you feel bloated so you may instinctively choose to eat salads and fruit for lunch. Or when you are on a diet to lose weight you will avoid carbs and feel better.

    The exact opposite is also said from people with CD or gluten intolerance. The gluten or wheat is like a drug and you just crave it like you cant get enough. The more you eat the worse your symptoms are.

    The allergy specialist doctor that I see believes that you should 'listen' to your body. You may or may not get a diagnosis of Celiacs...but if you dont it could be a food intolerance. If you feel better on a gluten-free diet and it helps with your symptoms.........stick with it. I can vouch that it has made me feel like a totally different person. I always wonder what the other 30 odd years of my life could have been like.
    Sugar Pie South
    Wed Apr 09, 2008 11:39 pm
    Newbie "Fry Cook" Poster
    Hair loss can be caused by an imbalanced thryoid, lack of protein in the diet, and vitamin deficiencies. (and I'm assuming you already knew chemically treated hair can be dry, brittle, and fall out). Gluten is not an essential nurtient, so I doubt it's that. You may want yoru Dr. to do some bloodwork.
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